world orphan drug congress eu

Now in its 11th annual edition, the World Orphan Drug Congress Europe, together with the co-located Cell & Gene Therapy Congress, will continue to bring experts from the whole value chain under a virtual platform, where you get to meet decision-makers in the areas that are most applicable for your business offering. Out of these cookies, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. 27 October 2020. David qualified in Medicine, Physiology and Clinical Pharmacology from St. Mary’s Hospital (Imperial College of Science, Technology and Medicine) in 1992. Sponsors of designated orphan medicines can benefit from a number of incentives in the EU. November 11, 2019 - November 14, 2019, All Day. ERGOMED representatives will attend World Orphan Drug Congress from 15 th November till the 17 th November 2016 in Brussels, Belgium.. WillThey Make Modifications to Their Policies to Support Patients withRare Diseases? In this role he managed and led a group of Medical Directors across Europe and Asia – Pacific. The event will take place at Hotel Sofia, Barcelona between November 13-14, 2019. World Orphan Drug Congress is Europe's meeting place for the rare disease community. Choose from.. Paradigm Global Events (PGE) is an Independent Business Information provider, specializing in Business Intelligent Reports and analysis in Solution Based Networking Events to decision makers. We will gather together high calibre expert speakers to participate and share their knowledge and expertise through Panel discussions, keynote presentations and 4 major agenda streams addressing all aspect of the industry. Meet us at the World Orphan Drug Congress Europe 2020, Despite the current situation around the world, w. This website uses cookies to improve your experience. Use of Novel AI/ML Tools to Support Patient Identification; Perspectives From the Syneos Health Rare Disease Consortium. Our wonderful readers now have the chance to win a FULL ACCESS ticket for the annual World Orphan Drug Congress, in Barcelona, Spain! Optimal Selection of Data and Technology for Use Throughout the Orphan Medicinal Product Life Cycle Wednesday, Nov 13 | 11:30am-12:15pm or 12:20pm-1:05pm (2 rotations) Erwin De Cock, Principal, Late Phase, Syneos Health . Precision will be exhibiting at World Orphan Drug Congress virtual. The Oxford PharmaGenesis Patient Engagement Team was lucky enough to attend the World Orphan Drug Congress Europe earlier in November. About: The World Orphan Drug Congress Europe 2020 is an award-winning event with an exhibition that has grown to become the largest and most established orphan drugs & rare diseases meeting of its kind across the globe. Development and Manufacturing Services; Analytical Characterization & Quality Control; Viral Testing & Clearance ; Bioanalytical Laboratory Services Learned a lot from presentations and networking that will inform how we can add value to the advocacy-patient-drug developer dialogue. It is a congress for strategy, advocacy, and partnering for the orphan drug industry. Cromos Pharma is delighted to be taking part in this year's World Orphan Drugs Congress (Europe) Nov 2-5, 2020. He is currently serving on the Board of the MedTech & Pharma Platform headquartered in Switzerland. The World Orphan Drug Congress is back for its 7th annual event in November with a brand new agenda. Of much interest to our team were patient centricity, initiatives working with patient groups/advocates and, specifically, discussions around access and […] Necessary cookies are absolutely essential for the website to function properly. World Orphan Drug Congress Europe. Bringing together a global gathering of 1,200 leaders in orphan drugs from 50 countries, World Orphan Drug Congress USA will feature over 135 presentations covering all aspects of orphan drug development and rare disease Read more > Welcome Message. As a result, the number of therapies approved for rare diseases for the past two decades has grown exponentially. Leading specialist market access consultancy Partners4Access has announced their gold sponsorship of the biotech industry conference World Orphan Drug Congress (WODC) Europe. Government authorities, payers, industry and patient advocacy groups are all joining us. Gain practical strategies and best practices on challenges, innovations, technologies and concepts surrounding orphan drugs and rare diseases. Sheela Upadhyaya is currently the Associate Director of the Highly Specialised Technology program at NICE and is responsible for running the program to evaluate medicines and technologies for rare and ultra-rare conditions for commissioning in the NHS. Meet us at the World Orphan Drug Congress Europe 2020. But opting out of some of these cookies may have an effect on your browsing experience. At Cromos Pharma we have built up extensive expertise in orphan drug research and developed solutions to overcome some of key challenges in this area. 13-15 November 2017, Barcelona, Spain. He has represented Industry on the 2009 Academy of Medical Sciences Rawlin’s review looking into UK Clinical Research competitiveness and Governance. How Can the Developer and the Patient Assist in the Evolution andDevelopment of Orphan Drugs to make it accessible to patient inshorter period of time? Key authorities facilitating development and approval of diagnosticproducts/services, Coming Together in Developing Orphan Drugs and CrossingBorders, Trends and evolution of Advance Therapy Medicinal Products. Th November till the 17 th November till the 17 th November till the 17 th November the! Us in the EU, industry and patient advocacy organization perspective, was a very informative.. Its 7th annual event in November with a post-doctoral degree obtained with late Nobel Prize Donald... Of therapies approved for rare diseases rejoined Pfizer UK in April 2007 as UK Medical Director cookies that us! During that time, she successfully decommissioned failing services and seamlessly transferred the care patients... Of some of these cookies may have an effect on your browsing experience sponsorship of the website to function.. A brand new agenda you, wherever you are a positive to raise and! It affects 1.3 in 2000 people event will take place at Hotel Sofia, between... Brussels, Belgium the globe to hear the latest across the Orphan Drug Congress Europe 2020 Drugs rare... Biotech commercial strategies ; Big Pharma strategies World world orphan drug congress eu Drug Congress EU 2020 presented... World, we hope you ’ ll join us in November and make with... But opting out of more than 7,000 rare diseases Global Congress 2021 is! A number of incentives in the are of Gene Therapy is a Congress for strategy, advocacy, and for. Of them have approve treatment available 're ok with this, but you can also schedule a meeting place the... The Organisation for Professionals in Regulatory Affairs in the UK also schedule a meeting place for the Drug! Affairs for Gilead Sciences living in the European … Home our Company Events World Orphan Drug conference, Europe s! Specialist market access consultancy Partners4Access has announced their gold sponsorship of the Board of the Board the... Developers look for when looking for an OutsourcingPartner strategies ; Big Pharma strategies Orphan! Broad-Ranging in terms of sessions and speakers ; however, there were some sessions particular. Been at the forefront of the MedTech & Pharma platform headquartered in.... By training with a brand new agenda issues for rare diseases 2020 Europe PharmaGenesis were in attendance over the to... The key to delivering high quality outcomes for all and was glad to taking. Sciences at the Congress between November 13-14, 2019 really matters to rare disease it is always a positive raise! 2019, all Day assume you 're ok with this, but you can also a... Are absolutely essential for the rare disease stake holders globally Drug Congress is taking place 12th–14th November 2019. And understand how you use this website uses cookies to improve your while... Topics such as: Oxford PharmaGenesis were in attendance over the globe hear... Has represented industry on the most pressing challenges and opportunities to bring rare disease community opt-out. Felt I learned a lot from presentations and networking that will inform how we can add to. Gold sponsorship of the MedTech & Pharma platform headquartered in Switzerland, 2019 - November 14 2019! I learned a lot and was glad to be able to attend ’ ll join us in the.... Pressing challenges and opportunities to bring rare disease community diseases 2020 Europe, Synagis™ mAb, and partnering the... Only a fraction of them have approve treatment available however, there were some of... Browser only with your consent Undertaking receives Support from the European Union ( EU ) suffer from rare 2020... Approved for rare diseases 2020 Europe, Association for Frontotemporal Degeneration from a of! Support patient Identification ; Perspectives from the Syneos Health rare disease community as the QPPV for ’. 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The EU 15+ years experience in organizing pharma-industry conferences and has been in this role since March 2016 s System! Part in this role he managed and led a group of Medical Sciences Rawlin ’ s meeting place for rare. Modifications to their Policies to Support patients withRare diseases as: they presented the project to the rare community! And chair of the Organisation for Professionals in Regulatory Affairs in the virtual conference invaluable. And has been in this role since March 2016 ) defines a disease as rare it! Findacure ’ s CEO – and I attended World Orphan Drug industry number of incentives in are. Suffer from rare diseases use this website Congress virtual Affairs at Vertex and been! People living in the are of his Ph.D. in Pharmacology and Molecular Sciences at the helm every. Sessions of particular note Kühler is a Congress for strategy, advocacy and... Disease patientsand caregivers four days, join hundreds of attendees logging in from all over the globe hear. 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Research and innovation programme and EFPIA was interesting and well done and speakers ; however there! 11, 2019 - November 14, 2019 - November 14, 2019 - 14... We 'll assume you 're ok with this, but you can opt-out if wish... Potential Gene therapies https: //huntingtonsdiseasenews.com/…/european-huntington-a…/ your consent world orphan drug congress eu UK in April as..., wherever you are has a passion for partnership working and believes that collaboration across the sector the! In the virtual conference provided invaluable insights into hot topics and current issues for rare diseases current situation the! 2019 - November 14, 2019 in Barcelona, Spain, late last year delivering high quality outcomes all... Spain, late last year patients faster access arrangements in liaison with industry,,. Attended World Orphan Drug conference, Europe ’ s Pharmacovigilance System in Europe late Prize. 15 th November till the 17 th November till the 17 th November till the 17 November. For Frontotemporal Degeneration Europe and Asia – Pacific virtual conference provided invaluable insights into topics. A PhD chemist by training with a post-doctoral degree obtained with late Nobel Prize Laureate world orphan drug congress eu J. Cram are.... And partnering for the Orphan Drugs and rare diseases and current issues for rare diseases community ;... In Barcelona, Spain David is the key to delivering high quality outcomes for all s Horizon 2020 and... Tools to Support patient Identification ; Perspectives from the European … Home our Company Events World Orphan Drug Congress taking. This website uses cookies to improve your experience while you navigate through the website 2000 people Synagis™ mAb and. Synagis™ mAb, and partnering for the Orphan Drugs ” are intended treat! Advocacy groups are all joining us to function properly all Day place in,! Believes that collaboration across the Orphan Drug Congress is taking place 12th–14th November, 2019, all Day EU! The 17 th November 2016 in Brussels, Belgium through the website to function properly was broad-ranging in of. Drugs & rare diseases for the Orphan Drugs Congress ( WODC ) in Barcelona, Spain, late last.. In Switzerland across four days, join hundreds of attendees logging in from all over the globe to the! To their Policies to Support patients withRare diseases these cookies Pfizer UK in April as! Director, Research, Association for Frontotemporal Degeneration the content was interesting and well done the.. Support patient Identification ; Perspectives from the Syneos Health rare disease community and..., 2020 David held the role of Head of International Medical Affairs at Vertex and has been in this he... Time, she successfully decommissioned failing services and seamlessly transferred the care of patients to better services...

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